About Compassionate Passages, Inc.
Compassionate Passages, Inc. is an international non-profit 501(c)(3) organization founded by Beth Seyda and Ann Fitzsimons. The death of Beth’s son, Dylan, and Ann’s niece, Riley, inspired them to combine their personal and professional experiences to support dying children and their families.
Beth’s profile:
• Co-founder & Executive Director of Compassionate Passages
• Bereaved parent
• Co-producer of award-winning educational film,
When a Child is Dying, and co-author of
The Supportive Care Handbook
• Speaker at local, national, and international conferences/workshops and
grand rounds on pediatric end-of-life care/bereavement issues
• Pregnancy Loss and Infant Death Alliance (PLIDA), Past-President 2009-2010, Board President 2007-2008
• Contributing writer to Open to Hope Foundation - www.opentohope.com
• Active member of Pediatric Palliative Care Coalition of North Carolina and the Duke Pediatric Quality of Life Program
• Research consultant on NIH-funded project that is developing and evaluating resources for parents, group facilitators, and direct care providers to support family communication when a school-age child has a life-threatening illness.
• Principal investigator with a team of University of NC-Chapel Hill physicians on evaluating directive vs. non-directive counseling methods. Results were published in Pediatrics.
• Ten years as a Community Member, University of NC Hospitals Ethics Committee
Ann’s profile:
• Co-founder & Assistant Director of Compassionate Passages
• Provided caregiving and family support during the illness and death of her niece, mother, sister, and father.
• Co-author of The Supportive Care HandbookBeth and Ann each have more than 25 years of marketing research and
consulting experience for Fortune 500 companies.