Published Works

NHPCO's ChiPPS Pediatric Palliative Care Newsletter, August 2007
“ Passing the Torch: Hard Lessons Learned and Shared from One Family to Another”
By Ann Fitzsimons and Beth Seyda


Patient Advocacy: Patient-Centered Strategies for Improving Health Care Quality,
July 2007

Chapter on Family-Centered Care written by Beth Seyda, Terri Shelton and Nancy DiVenere for a graduate level textbook published by Jones and Bartlett.


NHPCO's ChiPPS Pediatric Palliative Care Newsletter, May 2007
“ Current and Emerging Issues in Perinatal Loss and Birth Planning for Parents Facing Difficult Circumstances”

By Ann Fitzsimons and Beth Seyda


NHPCO's ChiPPS Pediatric Palliative Care Newsletter, February 2007
" A Primer on Perinatal Loss and Infant Death: Statistics/Definitions, Parents' Needs, and Suggestions for Family Care"

By Ann Fitzsimons and Beth Seyda

Pediatrics 2005, Vol. 116, pp. 104-111
"Comparison of Mothers' and Counselors' Perceptions of Predelivery Counseling for Extremely Premature Infants"
By Heather Keenan, MD, Mia Doron, MD and Beth Seyda
Beth was a principal investigator with two UNC physicians (NICU and PICU) on a research project about decision-making and communication between physicians and mothers of premature babies.

Hospice and Palliative Care Insights, Issue Two, 2004
"For the Families of Dying Children, There can be No 'What-Ifs'"
By Ann Fitzsimons

Hospice and Palliative Care Insights, Issue Two, 2004
"Dylan's Story"
By Beth Seyda

iris: the UNC Journal of Medicine, Literature & Visual Art, 1999
"Dylan's Story" by Beth Seyda
Hard copy available upon request.