Books and Catalogs
By Charles A. Corr and Joan McNeil
This book provides helpful guidelines for counselors and other adults working with adolescents who are struggling with the different issues of dying, death and bereavement.
Edited by Ann Goldman
This book reviews the medical, psychosocial and practical issues involved in caring for children dying from chronic disease. It is directed towards pediatricians, family doctors and other professionals who may be involved in caring for terminally ill children and their families, whether at home or in the hospital.
Edited by Lenore Hill
The contributors to this book have been privileged to share in the lives of families where a child has died. Each chapter deals with a particular aspect of care at/during the end of a child’s life.
7230 Maple Street
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402-553-1200 (phone)/402-553-0507(fax)
The Centering Corporation provides education and resources to support children and adults during their grief journey: books, videos, cards, dolls, workshops, etc..
by Deborah L. Davis, Ph.D.
Ms. Davis offers reassurance to parents who struggle with anger, guilt and despair after the heartache of a miscarriage, stillbirth or infant death. She encourages grieving and makes suggestions for coping.
Finding Hope When a Child Dies: What Other Cultures Can Teach Us
by Sukie Miller, Ph.D.
This book gives voice to the unpronounced fears and the consuming guilt that most people in Western cultures experience at the loss of children they have loved. Ms. Miller shares her research on rituals, beliefs, and practices that relate to the afterlife, and she offers healing stories from other cultures.
This book has been written for both parents and surviving children to provide insight and understanding into the death of a sibling, helping to aid in the grieving and healing process.
By Therese Rando
Chapter 13 of this book, The Dying Child, provides detailed information on societal reactions to the death of a child, adjusting to the terminal illness of a child, family responses to a terminal diagnosis of a child, while also providing suggested treatment interventions.
By Maria Housden
Ms. Housden shares the transformative lessons she received from her three-year old daughter, Hannah, who brought courage, honesty, and even laughter to her struggle with cancer in the hopes that her and Hannah’s story will bring comfort to those touched by a similar loss.
If I Get to Five -- What Children Can Teach Us about Courage and Character
by Fred Epstein, MD and Joshua Horwitz
Throughout his career as pediatric neurosurgeon, Dr. Epstein's young patients have been his most important teachers and trusted guides. These patients teach us the lessons we all need to learn in order to lie life to the fullest -- lessons about seizing the moment and facing our deepest fears, about holding someone's hand, and about embracing the joy and wonder of everyday life.
A heartfelt sharing of 22 stories of babies born prematurely as written by their parents. This book shares the ordeal, fears and joy of having a baby who is between life and death. It also includes tips on where their parents turned for help during this difficult time.
By Carol Henderson
Based on her journal entries captured while her son was dying, this book captures many of the universal themes families feel and experience during the death of a child. Its lessons will “appeal to those who’ve suffered the loss of a loved one, those who know someone who is suffering, and those who are interested in reading about the tragedies and triumphs of others.”
By Kenneth J. Doka and Terry L. Martin
This book provides suggestions on ways to intervene and help those experiencing grief due to the loss of a loved one. It emphasizes there are many healthy ways to cope with grief and examines different methods of coping (e.g., intuitive vs. instrumental).
Parental Loss of a Child
By Therese Rando
This book has been written to familiarize professionals in a variety of disciplines with the experience of the parental loss of a child. It provides perspective on different types of child death as well as the treatment needs for a variety of situations.
By Betty Davies, R.N., Ph.D.
This book is a combination of insightful caring, informed scholarship, rigorous research, and practical utility. Ms. Davies provides an introduction to sibling bereavement in childhood and directs an intelligent appreciation of its nature, characteristics, and significance.
Shelter from the Storm -- Caring for a Child with a Life-Threatening Condition
by Joanne Hilden, MD and Daniel R. Tobin, MD with Karen Lindsey
This book was developed to help families cope with whatever happens throughout the course of a child's illness. The goal is to empower families to fight for a child's life as long as recovery is a reasonable expectation, while at the same time preparing them to deal with the process of dying, if that turns out to be inevitable. A child can have a peaceful death, and families can learn to achieve whatever peace of mind is possible in such a shattering situation.
The Spirit Catches You and You Fall Down -- A Hmong Child, Her American Doctors, and the Collision of Two Cultures
by Anne Fadiman
This book explores the clash between a small county hospital in California and a refugee family from Laos over the care of Lia Lee, a Hmong child diagnosed with severe epilepsy. Lia's parents and her doctors both wanted what was best for Lia, but the lack of understanding between them led to tragedy.
Transcending Loss: Understanding the Lifelong Impact of Grief and How to Make it Meaningful
By Ashley Davis Prend
Ms. Prend asserts that death doesn't end a relationship, it simply forges a new type -- one based not on physical presence but on memory, spirit, and love. She addresses the issue of grief's ongoing impact and how it changes through the years.
Waiting with Gabriel -- A Story of Cherishing a Baby's Brief Life
by Amy Kuebeleck
Ms. Kuebeleck was five and a half months pregnant with her third child when she received the devastating news: her baby had a malformed heart, and the condition was fatal. Faced with an impossible choice, Ms. Kuebeleck and her husband, guided by faith and supported by friends and family, set out to make the most difficult decision of their lives.
By John W. James and Russell Friedman
Children grieve at all kinds of losses…from the death of a relative (sibling, parent, grandparent) or because of divorce, to moving to a new neighborhood or losing a prized possession. This book helps to guide children through their grief, even as a sibling/friend is dying. This book is from the authors of The Grief Recovery Handbook.
By Marge Heegaard
This resource helps children learn the basic concepts of illness. It includes various age-appropriate ways of coping with someone else’s illness by helping the children draw out their feelings about what they’re going through. A Facilitator Guide for helping children draw out their feelings is also available.
www.compassionatepassages.org